Video | FCS Patient Registry
Familial Chylomicronemia Syndrome
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FCS Patient Registry

More natural history studies need to be conducted to better understand and recognize earlier, less serious symptoms in patients with familial chylomicronemia syndrome (FCS). In the US, a patient registry is now available.

The registry is part of a NIH initiative in collaboration with Patient Crossroads to establish rare disease registries. Physicians are encouraged to inform their patients with FCS be part of a FCS registry to improve the collective understanding of this condition (https://connect.patientcrossroads.org/?org=fnla).

This registry is public and data is available to the patients who enroll and to all physicians who register on the website.

Daniel Rader, M.D., Perelman School of Medicine, University of Pennsylvania, Philadelphia PA is a leading authority in the management of FCS.

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